Sunday, December 27, 2009

Olean Times Herald's Coverage from Machias

OTH on the Eisenhardt project in Machias

"“It’s the best gift ever,” Vicki Eisenhardt said.

The home was customized to meet the needs of her family, especially her two sons, Dalton, 10, and Wyatt, 8, who both battle a rare genetic disorder that requires around-the-clock care.

Born with unbalanced translocation chromosome 15, a disease so rare that they may be the only ones in the U.S. who suffer from it, the boys have no sense of touch, and extensive lung damage has rendered them unable to speak. They use tracheotomy tubes to breathe, and feeding tubes to eat."

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